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C3N for CF
[Editor's Note: Erin Moore is "Doin' it for Drew"! Drew has Cystic Fibrosis (CF). CF is a life shortening genetic disease that affects the lungs and digestive system of about 30,000 children and...
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Jennie’s Shield
[Editor's Note: IBD is definitely not always guts AND glory...sometimes it's just guts...and as Jennie puts it - disobedient guts. Staying positive and empowering others to do the same is important...
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All or Nothing
This semester alone, I have heard the phase “all or nothing” easily a gazillion times. Okay, I might be exaggerating here, but what I’m trying to say is that my psychology classes have discussed –...
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Defining and Defying
As of today, I joined ‘the real world’ – aka started my first real-world-full-time-look-I’m-an-adult-honest-to-goodness-getting-paid job. Today went as follows: 1) I ran into the PI of the study (who’s...
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To Little Jennie
To my 12-year-old, newly diagnosed self: For a long time, you will regret your decision to tell your parents that you were hurting. You will wish you had kept the pain and the blood and the fear a...
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App-Solutely
Picture this: you’re waiting for class to begin, or an elevator to open, or for a cashier to call you to the counter. Sound familiar? Welcome to my life. With a fair amount of time spent waiting, I...
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27D
As the countdown to the ICN Strategic Planning Meeting dwindled, I began to pack my bag for my 30-hour trip to Washington DC. While I was truly excited to see my ICN family and my better half (cough...
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Staff Only
If ERs gave out awards to their most loyal customers, I’d be a no-brainer for the #1 Customer award. But, since I live in reality, I collect medical bracelets in lieu of my big award. Ending up in the...
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Let’s get healthier together
A must-read reblog from The Lybbaverse – about getting #healthier2gether. There are many reasons why ImproveCareNow (and collaborative healthcare networks like it) is a good thing. The website at...
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The Kindness Project
Throughout college, I worked in a research lab studying coping strategies of women who are HIV+, and one thing that we looked for in each participant was ‘mindfulness.’ To be mindful is just what you...
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Blast from the Past
After a morning GI appointment, my mom wanted to get a coffee before she took me to work. We drove to a local coffee shop and I decided to go in with her to grab a tea. We placed our … Continue reading →
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Who is an advocate?
In honor of IBD Awareness Week, which wrapped up on Saturday, I thought I’d come back from my blogging hiatus and talk about what it means to be an advocate. Over Thanksgiving break, I had a revealing...
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Tyler Moon for Empowered by Kids
Have you ever felt like the Internet holds a vast amount of both the scariest and most wonderful information all at the same time? Do you feel like when you’re searching for “good” news, hope or...
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Words Into Action
It was a Monday and I had a migraine. The hospital room was grey and muted. I was on my side with my eyes closed, trying to wish away the headache. A suave, slicked-hair doctor – the new GI for …...
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This is not how it ends.
My daughter asked me to write an honest retrospective on how she wasn’t always like how she is now. The changes happened on her terms, in her time, on her own. And, as well as I know her, even I didn’t...
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Together
I met with up an old friend for tea. As we were standing in line, she asked about my college friends and how they were doing. I started talking about one, and she interrupted, asking, “Is that the girl...
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Sitting In It
Or “The Crystal Ball Method of Informed Consent” ‘Why didn’t I know how hard this was going to be? When is it going to get better? Will it? Is it even worth continuing?’ I don’t know how much longer...
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Drum Roll Please…
In only a couple of days, there will be a flurry of texting between Sami and I, sending pictures of packing and potential Learning Session outfits back and forth. Yesterday I sent Sami a few pictures...
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The Kindness Project
Throughout college, I worked in a research lab studying coping strategies of women who are HIV+, and one thing that we looked for in each participant was ‘mindfulness.’ To be mindful is just what you...
View ArticleClik here to view.
Blast from the Past
After a morning GI appointment, my mom wanted to get a coffee before she took me to work. We drove to a local coffee shop and I decided to go in with her to grab a tea. We placed our … Continue reading →
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